FEVR doctor or families with the disease in Frankfurt?
Sorry I dont speak German. My daughter and I were diagnosed with FEVR and we live in Germany. I live close to FRankfurt and need to find a retinal doctor who treats FEVR. Does anyone have a recommendation?
I am totally lost, not only the disease is rare but I dont speak the language, so any help is very much appreciated. If anyone here lives around Frankfurt/Darmstadt and would be able to meet so that we can exchange experiences I would be very glad.
Thank you,
gjmaeda